This post will cover support groups for parents of children with Hydrocephalus
There are several support groups out there for parents or caregivers of individuals with Hydrocephalus. I will cover and give a brief summary of a few of them here. Part 3 of 3 of website recommendations!
Firstly
The aforementioned Hydrocephalus Association is a huge resource for those caring for someone with HC. It has information about conferences, support groups, assistance, and stories of hope and perseverance. If you or someone you know needs support, please contact them and get the support you need and deserve. This is a wonderful organization and I highly recommend their support.
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Secondly
Based out of Seattle Children's Hospital, this online support group offers support from anonymous users. It is a place where care-giving individuals can share their stories, frustrations, concerns, and joys. The support of others can go along way and sharing your successes can mean more to someone else than you can possibly imagine.
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Thirdly
Spina Bifida and Hydrocephalus Association of Ontario is a parent support group for individuals whose children have suffered from Spina Bifida or Hydrocephalus. They offer access to personal support, online meetings, groups support, and resources. All of these can be immensely valuable and they offer membership into their organization as well.
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Lastly
The National Hydrocephalus Foundation reaches across the entire nation offering support to individuals who may be overwhelmed with a seemingly immense diagnosis. This organization offers support and resources, they also offer assistance in searching for medical care if you are finding difficulties in selecting a physician or provider.
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That raps up my recommendations! I hope that any one of these resources can be of the least bit help. If you need assistance please reach out. It is okay to feel overwhelmed and troubled, but it is best to do something about it! Especially when there are options. Join us next week as we dive into a relatively boring post if you are not a Nurse or Nursing Student! I will be discussing Nursing Diagnoses for patients that have Hydrocephalus. This will be my last post, so if this where you jump ship I understand. Safe swimming and thanks for joining me on this adventure.
~Good luck out there, may the wind be at your back.
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